Voting is Now Open for New Board of Directors

Voting is now open until March 18, 2019 to Voting Members to elect the new Board of Directors of the Snyder-Robinson Foundation. All votes must be submitted by email to membership@snyder-robinson.org. As a reminder, Voting Members are those of you who signed up for membership as a parent/legal guardian, a sibling, a carrier of SRS, Read more about Voting is Now Open for New Board of Directors[…]

Registration for the 2019 MDBR Now Open

Registration for the 6th Annual Million Dollar Bike Ride on Saturday, June 8, 2019 is now open! Please follow this link to register: www.alumni.upenn.edu/MDBR2019 and share it with your friends and family to join a team! Registration “With Fundraising”: The fee for registration “With Fundraising” is $25.00 Please remember that if you select registration “With Fundraising”, there is a required fundraising minimum of $250. It Read more about Registration for the 2019 MDBR Now Open[…]

Penn Medicine Awards 2016 MDBR Research Grant Awards for Snyder-Robinson Syndrome

The University of Pennsylvania Health System (Penn Medicine) announced the recipients of the 2016 Million Dollar Bike Ride (MDBR) research grants.  Two of these grants were awarded for Snyder-Robinson research.  Congratulations to Dr. Schwartz and Dr. Fierro! Research Award #1 Charles Schwartz, PhD Greenwood Genetic Center Snyder-Robinson Syndrome pilot for $53,000 Title:  Role of Mitochondria Read more about Penn Medicine Awards 2016 MDBR Research Grant Awards for Snyder-Robinson Syndrome[…]

Amazon Smile Program Adds the Snyder-Robinson Foundation

The Amazon Smile program is operated by Amazon.com for qualifying non-profit organizations.  Amazon donates 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  For more information about Amazon Smile, please visit org.amazon.com. The Snyder-Robinson Foundation has been accepted into this program, and is now able to receive donations, based on Read more about Amazon Smile Program Adds the Snyder-Robinson Foundation[…]