The 2020 SRF Conference is Now a Virtual Event

With the current developments of COVID-19, the Snyder-Robinson Foundation has decided to host an online event in lieu of the in-person conference scheduled for June.  We are in the process of developing informative content and interactive virtual sessions with our SRF supporters and families. We will be hosting the virtual event the week of June Read more about The 2020 SRF Conference is Now a Virtual Event[…]

The 2020 Million Dollar Bike Ride Now Virtual

Due to the ongoing developments of COVID-19, UPenn’s Orphan Disease Center announced that this year’s Million Dollar Bike Ride is moving from an in-person gathering to a virtual event. Since we will no longer be meeting in Philadelphia on June 13, anyone interested in participating can register as a virtual rider to support Team SRS! Read more about The 2020 Million Dollar Bike Ride Now Virtual[…]

Polyamigos

Greenwood Genetic Center Hosts Rare Disease Workshop

  “In December 2017, the Greenwood Genetic Center (GCC) convened and hosted a workshop in Greenwood, SC in association with the Snyder-Robinson Foundation. Participants in the workshop included nationally-recognized basic scientists, physicians who work with patients with SRS, representatives of companies interested in developing therapeutics, and leaders from the SRS Foundation representing the interests of families.” Read more about Greenwood Genetic Center Hosts Rare Disease Workshop[…]

In Memory of John F. Gallagher

The Snyder-Robinson Foundation offers its deepest condolences to the family of John F. Gallagher.  John, of Saint Paul, Minnesota, was born on March 3rd, 1959 and died on October 28th, 2017 at the age of 58.  John had SRS, along with family members: brothers, Michael (deceased), Ted and Edward, his cousin, Joseph Buckley (deceased), his Read more about In Memory of John F. Gallagher[…]

Million Dollar Bike Ride Open Announcement

Dear MDBR Team Captains, The 2016 MDBR Grant Program is now open!  We have now posted the Request for Applications (RFA) on the Orphan Disease Center website, here. http://www.med.upenn.edu/orphandisease/rare-disease-overview.html   You may use this link to distribute the grant opportunity to those in your network who are interested in applying.  Remember, these grants are open Read more about Million Dollar Bike Ride Open Announcement[…]

The Snyder-Robinson Foundation Awards Predoctoral Fellowship

FOR IMMEDIATE RELEASE:   THE SNYDER-ROBINSON FOUNDATION AWARDS PREDOCTORAL FELLOWSHIP TO CHONG LI, UNIVERSITY OF MIAMI GRADUATE PROGRAM OF HUMAN GENETICS     McLean, VA – The Snyder-Robinson Foundation is delighted to announce that it has awarded a Predoctoral Fellowship to Chong Li of the University of Miami Graduate Program of Human Genetics and Genomics. Read more about The Snyder-Robinson Foundation Awards Predoctoral Fellowship[…]

The 2015 NORD Rare Diseases and Orphan Products Breakthrough Summit

The Snyder-Robinson Foundation was fortunate to receive a scholarship from the National Organization for Rare Disorders (NORD) to attend The Rare Diseases and Orphan Products Breakthrough Summit. The Summit featured over 20 speakers from the FDA, and included participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation, investment Read more about The 2015 NORD Rare Diseases and Orphan Products Breakthrough Summit[…]