Million Dollar Bike Ride
Since 2016, the Snyder-Robinson Foundation has been selected as one of the rare disease organizations to participate in the University of Pennsylvania’s Million Dollar Bike Ride. Every year, our team congregates in Philadelphia to bike to bring awareness to SRS, while raising money that goes directly towards research. Thanks to our supporters and UPenn’s matching contribution program, we’ve raised hundreds of thousands of dollars that’ve gone directly towards finding a cure for SRS. Join Team SRS by participating as a rider, a virtual rider, or by donating to our giving pages.
All of the money raised for the 2021 Million Dollar Bike Ride for Team SRS will go towards research investigating how a defect in Spermine synthase (SMS) affects the immune system. There is some evidence to suggest that some individuals with Snyder-Robinson Syndrome (SRS) have symptoms that are consistent with immune suppression and/or immune over-activation. Manifestations of these symptoms can present as recurrent infections or inflammation with or without a diagnosis of a specific autoimmune disorder.