If you are treating a patient with Snyder-Robinson Syndrome, it’s important to understand the disorder and all of its complexities. With a condition as rare as SRS, the research and literature are constantly updating as we learn more about the medical associations and treatment options for the individuals affected. Please use the following resources as tools to help you, help them.
Health Care Providers
The most comprehensive medical document citing every known medical issue associated with Snyder-Robinson Syndrome to date, based on the information collected in the Natural History Study. Available in: Dutch, English, French, German, Greek, Italian, Japanese, Polish, Portuguese, and Spanish.
Clinical & Scientific Videos on SRS
A collection of video presentations created by the leading scientists and clinicians of SRS for the 2020 SRF Conference. The videos range in topics, from research findings to clinical advice for treatment. All of the videos can be viewed for free, you just need to register with a username and password to watch.