July 6, 2020

Participate in the Natural History Study

Requesting participation for the Natural History Study!

The Snyder-Robinson Foundation (SRF) has developed the Global-Snyder-Robinson Registry, which will serve as a basis for a Natural History Study.  This study may provide important information to researchers, which we hope will contribute to a better understanding of Snyder-Robinson Syndrome and/or treatment approaches.  Analysis of genetic, environmental, and metabolic factors as well as reports of therapies or medications, which may have had particularly notable results, may collectively result in key information for researchers. We hope you will find value in participating in this study.

For more information, please contact teri.koerner@snyder-robinson.org.