Join the Snyder-Robinson Foundation by becoming a Member for free today.
Membership is a way to connect the SRS community across the globe and extend our reach to more families and supporters of the cause. By becoming a Member, you are showing support for the SRF and the individuals whose lives have been so greatly affected by the disorder.
When you sign up, you will either be considered a Voting Member or an Associate Member. Voting Members include parents/legal guardians and siblings of SRS, carriers, and individuals living with SRS. If you do not fall into any of those categories, you will be considered an Associate Member. Associate Members are the individuals who support the purposes of the SRF and/or are interested in getting involved.
In 2019, the Board of Directors for SRF will switch from a predominantly family-seated Board to one consisting of outside professionals. Voting Members will have the opportunity to vote on the election, appointment and removal of Directors of the Foundation. They also will have the right to approve of any changes to the by-laws, maintaining that those who are personally affected by Snyder-Robinson Syndrome continue to have a strong say in the Foundation’s direction.
All Members are invited to get involved in fundraising, research, and volunteer opportunities, or to serve as the SRS Advocate for their area (if interested). We are also planning on creating annual Membership meetings for everyone who joins.
If you have any questions, comments, or concerns, please email firstname.lastname@example.org.