Because Snyder-Robinson Syndrome is so rare, an effective way to spread awareness to our newly diagnosed SRS families, supporters, and clinicians is by sharing your story (or the story of your loved one(s) affected by SRS). Your story may be posted on our website or social media accounts to help educate the public.
If you are from outside of the United States and would like to share your story but cannot translate the form below to your language, please email your story (in 1,000 words or less) to membership@snyder-robinson.org.