Share Your SRS Story

Because Snyder-Robinson Syndrome is so rare, an effective way to spread awareness to our newly diagnosed SRS families, supporters, and clinicians is by sharing your story (or the story of your loved one(s) affected by SRS). Your story may be posted on our website or social media accounts to help educate the public.

If you are from outside of the United States and would like to share your story but cannot translate the form below to your language, please email your story (in 1,000 words or less) to [email protected].

We will only use this email address if we need to contact you about your submission.
By default, we like to share the City/State or Country that you provide here within the story. If you prefer to have your location remain anonymous please select "NO" above.
Click or drag a file to this area to upload.
By submitting your story/photo, and clicking the checkbox above, you grant the Snyder-Robinson Foundation permission to use your story, photo, first name, and city/state (if provided) as part of our ongoing programs to increase rare disease awareness. We will never publicly use your last name, email, or phone number.