Welcome to the Snyder-Robinson Foundation

What is SRS?

Discover More about Snyder-Robinson Syndrome

Learn More About SRS, Read our History, and Where We're Headed

About Us

The Snyder-Robinson Foundation is a 501(c)(3) nonprofit organization that is dedicated to furthering knowledge about Snyder Robinson Syndrome (SRS) through the acquisition and sharing of information with families, medical professionals and researchers. The Snyder-Robinson Foundation was formed in 2014 by the parents of 6 children diagnosed with SRS. We formed a connection after reaching out to one another through mutual doctors, social media, and one another.

  • Dedicated to Advancing Medical and Scientific Research.

  • Formed by Families of 6 SRS Patients.

  • Making a Worldwide Impact for an Ultra-Rare Disease, called SRS.

SRS Stars

Our Incredible Kids Who Brave SRS Every Day

Brandon

Cody

Connor

David

GIANLUCA

Jim

Joey

Levi

Luke

Miles

Samuel

Zac

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