Each Star is bright & together they light up the night

 
 

Each Star is bright & together they light up the night

 
 

Our Mission

The Snyder-Robinson Foundation's mission is to advance medical and scientific research relating to Snyder-Robinson Syndrome and related disorders, in order to find a cure or treatments that will improve the lives of the boys and men affected by this rare disease.

 
 

Our Mission

The Snyder-Robinson Foundation's mission is to advance medical and scientific research relating to Snyder-Robinson Syndrome and related disorders, in order to find a cure or treatments that will improve the lives of the boys and men affected by this rare disease.

United World Wide

With around 80 known cases of Snyder-Robinson Syndrome across the globe, our reach spans over 20 countries

 
 

SRF Conference

In June, the Snyder-Robinson Foundation held a virtual conference with recorded video presentations and live panel discussions featuring researchers, clinicians, and therapists who have professional experience with SRS.

 
 

SRF Conference

In June, the Snyder-Robinson Foundation held a virtual conference with recorded video presentations and live panel discussions featuring researchers, clinicians, and therapists who have professional experience with SRS.

Ways to Help

Volunteer

Donate your time by virtually volunteering with SRF.

Become a Member

Become a member of SRF for free in two minutes to show your support and help us increase our reach.

Join the Natural History Study

If your loved one has SRS, you have valuable information that can majorly contribute to our understanding of SRS.

Donate

Every dollar goes towards improving the lives of SRS individuals.

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