Welcome to the Snyder-Robinson Foundation

What is SRS?

Discover More about Snyder-Robinson Syndrome

Learn More About SRS, Read our History, and Where We're Headed

About Us

The Snyder-Robinson Foundation is a 501(c)(3) nonprofit organization that is dedicated to furthering knowledge about Snyder Robinson Syndrome (SRS) through the acquisition and sharing of information with families, medical professionals and researchers. The Snyder-Robinson Foundation was formed in 2014 by the parents of 6 children diagnosed with SRS. We formed a connection after reaching out to one another through mutual doctors, social media, and one another.

  • Number of Research Grants & Awards through the Snyder-Robinson Foundation

  • Years as a Registered Member of the National Organization for Rare Diseases (NORD)

  • Hundreds of Miles Riden to Raise Money for Rare Diseases, Including SRS

  • Confirmed Children Affected by SRS (approximate)

SRS Stars

Our Incredible Kids Who Brave SRS Every Day

Brandon

Christopher

Cody

Connor

David

GIANLUCA

Jim

Joey

Levi

Luke

Miles

Samuel

Wyatt

Zac

Please Support the Snyder-Robinson Foundation by Making a Donation with PayPal

News