Table for Five

Connect virtually with other SRS families

We started hosting “Table for Fives” during the height of the COVID-19 pandemic as a way to interact and connect with our SRS families around the world via video call. Since our SRS community is so small, the impact of speaking with others who know what it’s like to deal with the many challenges associated with SRS was both a comfort and a source of hope. The idea is to convene via video conference (through Zoom, Google Meet, etc.) with small groups of around 5 different SRS families to have open discussions about SRS and your personal experiences.

It is now in the hands of our SRS loved ones to schedule and facilitate these Table for Five meet-ups. Just follow the instructions provided below. If you have any questions regarding hosting, scheduling, or facilitating these meetings, contact Cameron at cameron.hancock@snyder-robinson.org.

Discussion Topics & Ideas for Table for 5

SRS Specific Topics:

  • Seizure management

  • Helpful therapeutic interventions

  • Behavioral concerns

  • Long-term care

  • Caregiver Support

  • Bone Health & SRS

Group Ideas:

  • Seek out SRS families in your country or who speak your preferred language to join your group

  • If you want to keep it fun, have everyone bring their favorite food or drink for a virtual dinner party! You can be as creative as you want (book club, introduce your SRS Stars, etc.)

  • If you want to continue to stay in touch with your group, make it a recurring meeting where you meet monthly or whatever time frame works for everyone.

Instructions for participating in & hosting Table for Fives

  1. Select the date and time on the calendar below that works best for you.

  2. Once you’ve decided on a date, go to the SRS Family Facebook Group to share the date & time of the proposed event and invite other SRS families to join you. All you will need is their email addresses to schedule the meeting.

  3. Once you have a group of people (anywhere between 1 - 6 others) you (or someone in the group) will schedule the meeting via video app. We have used Zoom in the past for these meet-ups, which is easy to set up & free to use, but there are other free services that can be utilized as well. Click on your preferred platform for instructions on setting up video calls.

    1. How to Set up a Zoom Meeting

    2. You can also create a group video call through the SRS Family Facebook Group via a Room. Here are the instructions.

    3. How to start or schedule a Google Meet video meeting